Letter of Intent Special Needs

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What Is Letter Of Intent Special Needs?

The Special Needs Letter of Intent

An important companion piece to a special needs trust is a “letter of intent” or “letter of instruction.” Learn more and get your free Letter of Intent.

Letters of Intent

When you have a child with a disability or special health care needs, having a Letter of Intent about your and your child’s vision for their future can be an important part of your estate plan. By answering the question of what will happen to them if you are not able to take care of them is very important.

You can get powers of attorney, designate a guardian if needed, and take care of money and property through a will or special needs trust . But, what about your child’s everyday care? What about their school needs? What about the medications and medical procedures they need?

You know so much about your child’s unique needs, likes, and dislikes that you sometimes take care of them without even thinking. Imagine if everyone else who took care of them knew these things just as easily.

That’s the purpose of a Letter of Intent, often called an LOI.

An LOI is a document that serves as a life plan for your child. It helps to properly direct their overall care, if you aren’t around to oversee things. Even though you don’t use a lawyer to write this letter, and it doesn’t need to be notarized, the court might use it to direct a future caregiver. And a medical team might use it to make their decisions. When you combine an LOI with your other legal documents, as well as a will and a special needs trust, you have a set of tools to make sure your child is taken care of even if you aren’t around or able to.

Source: navigatelifetexas.org

What Goes Into a Letter of Intent?

The LOI should describe everything involved in taking care of your child. It might cover these areas:

  • Financial and legal issues.
  • Medical issues, health, and wellness.
  • Relationships.
  • Housing.
  • Personal care.
  • Work.
  • Fun or relaxing activities your child likes.
  • Spirituality and faith.
  • Routines and special considerations.
  • Hopes and dreams for the future.
  • Communication systems.
  • Behavior supports and recommended responses to challenging behaviors.

Source: navigatelifetexas.org

How Do I Write an LOI?

Creating an LOI might seem like a lot of work at first.

But, the good news is that you don’t have to put it together in a single sitting. An LOI should be a living document that changes as your child’s development, desires, needs, abilities, and caregivers change. That means you can take your time to create each part of the plan and update it when needed.

Source: navigatelifetexas.org

Tips for Writing an LOI

Start with a template. The Special Needs Trusts Online has a good one.

Involve your child in the process as much as they are able. Have them help you answer the questions about their dreams and desires, likes, and dislikes.

Don’t try to do it all in 1 chunk. Take small bites out of the entire plan by filling in a section at a time. Maybe even set a certain day of each month to work on it.

Involve friends and loved ones in the process. They might have good suggestions or can just help to keep you on track with your writing.

What to Do Once You Have Your LOI

Once you’ve written the LOI, take a deep breath and congratulate yourself! Here are some tips to get the most use out of it:

Store an up-to-date LOI copy with your will and make sure your loved ones know where to find it.

Use it as a tool for advocacy. Because it clearly lists preferences and needs, it can help you or your child advocate with their doctor, school, or health insurance company. Even if these people have not seen an LOI before, pointing out how it includes a clear list of your child’s needs can help your discussion.

Pick a date each year to review and update the LOI.

Source: navigatelifetexas.org

Creative Uses for Your LOI

Share it with teachers or summer camp directors just in case a medical need comes up, and so they can better know your child’s needs.

Use the wants and needs section to direct your school-planning meetings.

Use it to train any new caregivers.

Read it over whenever you’re making a big plan or decision for your child.

Use your LOI updates to track your child’s accomplishments and growth. Maybe they have new dreams, more independence, or different skills than in the past.

Keep a copy in your care notebook to bring to doctor’s visits.

Source: navigatelifetexas.org

For More Information Special Needs Trusts Online Can Help!

Headshot face 1 | word2I am a Special Needs Trust Attorney and I am here to help. I am the founder of a nonprofit corporation to that provides quality affordable Special Needs Trusts to families. I have over 20 years of experience helping families just like yours. Find out more information at SpecialNeedsTrustsOnline.com or click here to set up a free appointment.

Source: specialneedstrustsonline.com

What can a Special Needs Trust pay for?

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Overview of what a special needs trust can pay for

Sometimes it is difficult to figure out what expenditures are appropriate from a Special Needs Trust. Confusion may arise because of differences in state law, trust size, age or condition of the beneficiary, terms of the trust itself, or any number of other variables. To compound the problem, there has been little direct guidance from the courts, and the legal literature is far from extensive.

Source: specialneedsalliance.org

The Range of Choices.

A Special Needs Trust might have been created to handle proceeds from a personal injury settlement or an inheritance left directly to an individual with a disability. It might be designed to protect eligibility for Supplemental Security Income (SSI), Medicaid or other public benefits programs — or for a number of programs (usually including those two) at the same time. Common questions about use of trust money revolve often revolve around travel and entertainment, transportation and housing — but all manner of other expenditures crop up as an issue from time to time.

In one case, a mother acting as trustee might wonder about her ability to pay another family member for personal care not covered by Medicaid. In the next, a corporate trustee might be willing to pay for a trip to Disney World, but not know how to cover the costs or whether to pay for other family members who travel with the trust beneficiary. In yet another, the father who established the trust might chafe at the suggestion that he should not use money he contributed to the trust to pay for improvements on the family home.

Source: specialneedsalliance.org

Where to Look for Answers.

The first advice to a trustee is usually to look at the trust document itself. It may be fine that state and federal law permit a particular expenditure, but if the trust does not then the trustee cannot take advantage of the government’s flexibility. Sometimes there is nothing to prohibit a proposed expenditure in public benefits law or the trust document, but that still might not mean that the purchase is appropriate — it might be imprudent considering the circumstances, or a violation of general trust administration principles.

All that said, the very purpose of Special Needs Trusts is usually to provide extra, or supplemental, items to the beneficiary — the things that the system, family and other sources cannot or will not provide. One of the very few court cases addressing this concept is a 2004 Minnesota Court of Appeals case, In re: The Irrevocable Supplemental Needs Trust of Collins.

Mr. Collins had been appointed trustee of a Special Needs Trust for the benefit of his teenage daughter. Over the course of five years, he used trust income and assets to pay for a number of items that later were challenged in court. A local judge ordered Mr. Collins to repay a little more than $2,000 of allegedly improper expenditures.

What had Mr. Collins paid for with trust funds that got him in trouble? Among other things, he had purchased a snowmobile for her when she was 13, and Britney Spears concert tickets for her a year later. The Judge reviewing his accounting decided that some of those expenditures were inappropriate for a young beneficiary, and that was why Mr. Collins was ordered to return the funds from his own money.

Source: specialneedsalliance.org

The Court of Appeals Reviews the Accounting.

Mr. Collins appealed the order directing him to return funds, and the state Court of Appeals (one step below the state Supreme Court in Minnesota) agreed with him. The proper approach, ruled the appellate court, was not to second-guess the trustee as to each expenditure, but to determine whether the trustee was properly exercising his discretion. Since the whole point of a Special Needs Trust (or, as the trust was called in this case, a “Supplemental Needs” Trust) is to provide for extra benefits that are not otherwise available, the trial judge here should have presumed that a trustee/father knows best whether his daughter is mature enough to ride a snowmobile or attend a Britney Spears concert.

The Minnesota case gives some insight into how judges — at least appellate judges — view Special Needs Trust expenditures, but it does not provide much assistance. That is partly because the decision was “unreported.” That means that the judges decided that it should not be made available to cite as precedent. Even if it had been reported, it might not be very useful outside of Minnesota.

Nonetheless, the Collins case can give us some assistance in determining whether a given expenditure should be approved from a Special Needs Trust. Among the items to consider in a given case:

1. Is the expenditure permitted by the trust terms? Is it prohibited by Medicaid or Social Security regulations?

2. Does the expenditure clearly benefit the trust’s beneficiary? Does it also benefit others, such as family members? If it benefits the trustee (as, for instance, a home improvement that clearly aids the beneficiary but also increases the value of the home owned by a parent/trustee), it should be scrutinized much more closely, and may not be permissible in all circumstances.

3. Is there enough money in the trust to make the proposed payment without seriously affecting the ability to provide other benefits in coming years? Not every expenditure that reduces future benefits is forbidden, but the larger the expenditure (in relation to the trust’s size), the harder it is to justify.

4. Is the proposed expenditure related to the purpose for which the trust was established? In other words, if the trust came from a personal injury settlement it will ordinarily be easier to approve expenditures for therapy or adaptive equipment related to the injury for which the settlement was obtained.

5. Are there other sources of funds? If public benefits are available to provide the same items, the money ordinarily should not come from the trust. But if the public benefits are so limited that the quality of the items will suffer, or if it takes an extremely long time for equipment or services to get to the beneficiary, the trust might still be available to make the purchase more quickly or to purchase better supplies or equipment. Where family resources are available, it might be better to save trust funds — especially if the beneficiary is a minor, and parents have a general obligation of support.

There will, of course, be other considerations in each case. We do not mean to give an encyclopedic list here, so much as to suggest that decisions about expenditures can be very difficult. It is not enough for the trustee to really, really want to make the expenditure, or to be completely convinced it is appropriate — it is important to consider the proposal from all sides, admitting that there may be good reasons not to proceed, as well. The key is that the trustee must act reasonably, remain free from self-interest or bias, and above all, be prudent.

Source: specialneedsalliance.org

How Does a Trustee Act Prudently?

The best way to assure that proper decisions are made, and to minimize the possibility of later difficulties, is to seek independent advice from a qualified legal expert. While many lawyers may insist that they know how to draft Special Needs Trusts, not all of them have experience dealing with state and federal agency treatment of expenditures.

Sometimes it may be appropriate to consider the options and risks, to make an expenditure and report it to the appropriate government agency and wait for a response. Sometimes it may be better to seek the blessing of the court system, giving notice to government agencies as appropriate and asking for a determination of the validity of the proposed expenditure in advance. The Special Needs Alliance advisor you consult will be able to give you guidance with expenditures, accounting requirements and government benefits.

 

Source: specialneedsalliance.org

Special Needs Trusts Online Can Help!

I am a Special Needs Trust Attorney and I am here to help. I am the founder of a nonprofit corporation to that provides quality affordable Special Needs Trusts to families. I have over 20 years of experience helping families just like yours. Find out more information at SpecialNeedsTrustsOnline.com or click here to set up a free appointment.

Source: specialneedstrustsonline.com

Special Needs Estate Planning

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Introduction to Special Needs Estate Planning

Families with special needs children must exercise extra care in making their estate plans. This is true whether their special needs child is still a minor or now an adult, and particularly so when the child is or in the foreseeable future will be — receiving needs-based public benefits such as SSI or Medicaid. While planning considerations for such a child will vary depending upon the child s age, competency, and other family considerations, the goal is always the same: parents want their estates utilized to enhance and enrich the life of their special needs child while maintaining the child s enrollment in essential public benefits programs. These goals can be met through the use of a properly prepared special needs trust.

The essence of all special needs estate planning is to ensure that the portion of the parents estate which passes to their special needs child at the time of their death is not considered an available asset, as defined by public benefit agencies. Parents must be mindful of both income and principal, as too much monthly income, as well as too much cash, can negatively impact their child s future eligibility for benefits.

Source: specialneedsalliance.org

Purpose

Special needs planning works to preserve public benefits for the disabled child while supplementing and enhancing the quality of the child s life. This type of planning is useful for many different purposes, including

lifetime money management for the benefit of the disabled child;

protecting the child s eligibility for public benefits; and

ensuring a pool of funds available for future use in the event public funding should cease or be restricted.

Source: specialneedsalliance.org

Planning Options

The options available to families in making an estate plan for a special needs child who is receiving needs-based public benefits include the following:

Disinherit the child. This is the simplest option, but it does nothing to accomplish the essential purpose of enriching the life of the special needs child.

Give the estate to the brothers and sisters. At the parents death the entirety of the estate is distributed to the child s siblings, with the understanding that they will take care of their disabled brother or sister. There are inherent risks with such an approach, including claims by the siblings creditors, bankruptcy, divorce, mismanagement of funds, etc. This may be appropriate when the child s potential inheritance is modest.

Leave an inheritance to the disabled child. The outcome of this planning option will be the almost certain negative impact on the child s continued eligibility for publicly funded benefits. At the least, benefits may be reduced. In the worst case scenario, the child may be rendered ineligible for SSI and Medicaid, and with this ineligibility for assisted housing, supported employment, vocational rehabilitation, group housing, job coaching, attendant personal care aides, and transportation assistance. The key benefit is Medicaid, as this program represents the child s ability to access not only essential health care but many other public assistance programs.

Leave any inheritance in a Special Needs Trust. This last option will be preferred by most families in their efforts to provide and ensure a positive outcome for a special needs child. By using a properly drafted and properly administered Special Needs Trust, the child will continue to qualify for public assistance programs that would otherwise be unavailable to the child, especially the means tested programs that require the child to meet strict financial eligibility criteria. A Special Needs Trust works because the assets held in the trust are not available to the child. These types of trusts must be discretionary spendthrift trusts, with strict limits on the trustee’s ability to give money to the child. Under no circumstances can the special needs child force the trustee to make trust money available to the child. An additional benefit of the Special Needs Trust is that because the child is often unable to manage his or her own finances, the parents, in creating the trust, will appoint a trustee to act as the child’s money manager, and in so doing, ensure proper financial management after their death.

Source: specialneedsalliance.org

Special Needs Trusts Online Can Help!

I am a Special Needs Trust Attorney and I am here to help. I am the founder of a nonprofit corporation to that provides quality affordable Special Needs Trusts to families. I have over 20 years of experience helping families just like yours. Find out more information at SpecialNeedsTrustsOnline.com or click here to set up a free appointment.

Source: specialneedstrustsonline.com

 
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