New Special Needs Trust Rules 2024: What to Know and How to Prepare

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If you or a loved one lives with a disability, you may already know how a special needs trust can help maintain eligibility for certain public benefits. These unique trusts allow individuals with disabilities to set aside funds for their needs without losing access to vital programs like Medicaid and Supplemental Security Income (SSI). Recently, federal law regarding special needs trusts was updated with new statutes and regulations. These changes impact everything from age limits and trust contributions to required oversight and accountability. Anyone currently administering a special needs trust or looking to establish one will need to understand the latest rules to stay compliant. Let’s break down key updates regarding special needs trusts and provide tips to make the most of these important planning tools in 2024 and beyond.

Key Changes in the Latest Rules for Special Needs Trusts

Some of the most notable changes in federal law, under The Special Needs Trust Fairness Act of 2016, affect first-party special needs trusts in particular. First-party trusts are funded with assets belonging to the person with disabilities. Common sources include lawsuit settlements, inheritances, or work earnings. Some key things to note about the new rules include:

  1. Self-Established Trusts: Individuals with special needs can now establish their own first-party special needs trust without the need for a third party or going through the courts. This is a major change that enables more independence.
  2. Age and Funding Requirements: Trusts established by the person with special needs have the same benefits as those set up by parents, grandparents, guardians, etc. To qualify, the trust must be funded with assets of the disabled individual under age 65 and contain payback provisions upon death.
  3. Increased Independence: A major goal of this law change is to increase the independence and empowerment of people with special needs by making it easier and more affordable to establish these trusts.

The latest rule changes have made it easier for individuals to establish their own first-party special needs trusts. However, proper guidelines must still be followed to ensure eligibility for government benefits. While first-party trusts are now more accessible, other types of special needs trusts remain important options as well. The needs, sources of funding, and family situation determine which type of trust is most appropriate.

Types of Special Needs Trusts

Special needs trusts are an important tool for providing supplemental support while preserving eligibility for government benefits. There are a few main options when establishing a special needs trust, each with its own rules, benefits, and drawbacks. Choosing the right trust starts with understanding the different types available:

  1. First-Party Special Needs Trusts: Funded with the assets of the individual with disabilities. These trusts are often used when the individual receives a settlement, inheritance, or other personal funds.
  2. Third-Party Special Needs Trusts: Funded by someone other than the individual with disabilities, such as a parent or grandparent. These trusts do not require payback provisions upon the beneficiary’s death.
  3. Pooled Special Needs Trusts: Managed by nonprofit organizations, these trusts pool resources from multiple beneficiaries for investment purposes while maintaining separate accounts for each beneficiary.

Preparing for the New Rules

To ensure compliance with the new rules and make the most of a special needs trust, consider the following steps:

  1. Consult with a Professional: Work with an attorney or financial advisor who specializes in special needs planning to understand the implications of the new rules and how they apply to your situation.
  2. Review Existing Trusts: If you already have a special needs trust in place, review it to ensure it complies with the new regulations. Make any necessary amendments to maintain eligibility for benefits.
  3. Educate Yourself: Stay informed about the latest developments in special needs trust law. Resources like the Special Needs Alliance and other advocacy organizations can provide valuable information and support.

By understanding and preparing for the new special needs trust rules, you can ensure that you or your loved one continues to receive the support and benefits needed to thrive.


I hope this detailed blog post helps you understand the new special needs trust rules for 2024. If you have any specific questions or need further assistance, feel free to ask! https://www.specialneedstrustsonline.com

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